This is the face of rare. It’s also the face of HOPE, incredible strength, and endurance. Keegan was diagnosed with a rare disorder, Septo-Optic Dysplasia/ Optic Nerve Hypoplasia at birth, with it there have been many other diagnoses in the course of his 11 years… One thing I can say about Keegan and so many of the children with rare disorders is they are the most amazing children you will have the pleasure of meeting. Keegan inspires us because he tackles every obstacle placed in his way and nothing dulls the shine that is his incredible spirit!
Today is rare disease day. A day to recognize the many people diagnosed with a rare disease.